My Story

When I was 19 I had a beautiful baby boy called Toby-Jay. 

He was diagnosed with Tuberous Sclerosis. 

Against all odds he is nearly 12! 

The TSA and TS families have been a life line for us. So I will be running for them ❤️

The TSA is the only UK charity dedicated to supporting and representing everyone affected by TSC. We’re here for everyone in the TSC community, including families, individuals and professionals focused on TSC.

Your fundraising means the TSA can continue working hard to help people today and find a cure for tomorrow through:

Support and information - Our free TSA Support Line, providing up to date information and our annual flagship annual events.

Research - Funding world-class research into the causes, management and treatment of TSC so we can continue to make major breakthroughs.

Campaigning - Influencing NHS policy to ensure that the needs of people affected by TSC are met and they get the treatment and care they deserve.

"As a family, we’ll always be thankful for the TSA. Knowing that they’re here, fighting every day for people with TSC, is uplifting and helps make the future brighter" - Mum, Laura Holt

The dedication and hard work behind raising vital funds means that the TSA can ensure that no-one is ever alone with TSC.

The TSA will never stop being here for individuals and families affected by TSC.